This survey asks about your medical relationships, disease symptoms, and health. It should take around 30 minutes to complete (you can pause or stop at any time). We are supporting this study as it will raise awareness about important issues and where more support may be needed, but it is entirely up to you whether to take part.
Everyone who enters can choose to be entered into a prize draw with two prizes of £200 being drawn once the survey closes, which will likely be in January or February 2025.
Please use this link (https://bit.ly/MM_PATIENTS2024) to access the survey and information sheet. If you have any questions, please contact Melanie on mas229@medschl.cam.ac.uk or our office on office@sjogrensuk.org
This study team is led by Dr Melanie Sloan, who is a rheumatology patient as well as a senior academic. Her team includes senior rheumatologists, Prof David D’Cruz and Dr Arvind Kaul, and is well-known as leading the way in fully involving patients as research partners and changing care by the work they publish. This is only made possible by all YOUR involvement in these studies.
Please see below for some of the recent relevant articles they have published with your views and experiences:
Prevalence and identification of neuropsychiatric symptoms in systemic autoimmune rheumatic diseases: an international mixed methods study. https://doi.org/10.1093/rheumatology/kead369
Telemedicine in rheumatology: A mixed methods study exploring acceptability, preferences and experiences among patients and clinicians. https://doi.org/10.1093/rheumatology/keab796
