March 2025

Have Your Say: Help Shape Quality Standards for Rare Disease Care RAIRDA’s Rare Disease Quality Statement Project is inviting patients, carers, healthcare professionals, policymakers, and patient organisations to take part in their second survey. This important project aims to define what high-quality, sustainable care, treatment, and management should look like for people living with rare […]

The 5th Annual Science in Medicine School Teams Prize is now open, a national competition designed to inspire sixth form students to explore how science, technology, and health research can work together to improve lives. We’re encouraging teachers, parents, carers, and supporters to help motivate students to take part in this unique opportunity to step

As Lupus UK celebrates its 35th anniversary, they are reaching out to the lupus community to shape their priorities for the future. They want to hear from people living with lupus, carers, and healthcare professionals about what support and resources are most needed. To gather insights, Lupus UK has launched: Your input will directly influence

Please see links to a publication on the long-term impact of misdiagnoses from Dr Mel Sloan and Prof David D’Cruz’s research team at Cambridge published on Monday which many of you contributed to. Mel, David, and the research team, which includes many patient partners and whose core ethos is to research the topics that YOU