Please see links to a publication on the long-term impact of misdiagnoses from Dr Mel Sloan and Prof David D’Cruz’s research team at Cambridge published on Monday which many of you contributed to. Mel, David, and the research team, which includes many patient partners and whose core ethos is to research the topics that YOU prioritise, would like to thank you very much for all your support. They also send their great appreciation to their current charity funders: The Lupus Trust, LUPUS UK, and Vasculitis UK, and thank all the rheumatology charities and BSR for their amazing support and collaboration.
Link to published paper – ‘I still can’t forget those words’: mixed methods study of the persisting impact on patients reporting psychosomatic and psychiatric misdiagnoses. https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keaf115/8042899
This was reported widely in the media and should help us to all work together to improve awareness and care:
- Example article: https://theconversation.com/all-in-your-head-when-doctors-misdiagnose-autoimmune-disease-as-psychosomatic-250953.
- Example interview (Evening Standard) : https://pod.fo/e/2b4837
A summary has been made by Debbie at Lupus UK can be found here: https://lupusuk.org.uk/2025/03/03/research-in-the-news-the-impact-of-misdiagnosis/
