We’re supporting the RAISE study, a national research project funded by the NIHR, which is looking into how the NHS can better support people with Rare Autoimmune Rheumatic Diseases (RAIRDs) like Sjögren’s.
Researchers have already spoken with patients in various focus groups, and they’re now launching a UK-wide survey to better understand what kind of support patients want and need.
If you live with Sjögren’s, your insights are essential.
Your responses will help co-design a self-management programme to benefit others in the future.
The survey is anonymous, easy to complete, and available online here: www.tinyurl.com/RAISE2025
Please take part, and feel free to share with others in the Sjögren’s community.
Together, we can influence how care is shaped.