Trustee Linda Stone Co‑Authors Patient Engagement Case Study

We are proud to share that our trustee Linda Stone has contributed as an author to a newly published paper:

“Embedding patient engagement in the R&D process of a life sciences company through co‑creation with a patient expert R&D board: a case study.”

The paper presents a case study of Servier, a life sciences company that established a patient expert board to embed a patient‑centric culture within its new research and development institute. The board was created through collaboration between Servier, the patient consultancy Patvocates, and patient experts from across Europe.

Key highlights include:

  • 18 patient experts from 10 disease areas and 10 European countries joined the board.
  • Five working groups were formed, focusing on initiatives such as a patient advisory council, decentralised trials, and staff training on patient engagement.
  • The study offers practical recommendations for companies seeking to embed patient involvement in their R&D strategies.

Linda is listed under author affiliations as: Sjögren’s UK (Previously British Sjögren’s Syndrome Association), Birmingham, UK.

This is a fantastic recognition of Linda’s expertise and of Sjögren’s UK’s role in advancing patient‑centred research and advocacy.

Click the image below or here to access the case study

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