Sjögren's UK
was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment. A self-help organisation with around 2300 members, the Sjögren’s UK is dedicated to providing mutual support and information to individuals affected by this disabling disease. We have regional support groups throughout the UK whose members include sufferers and supporters who work together in helping one another cope with the day-to-day challenges of this debilitating and distressing condition. The Sjögren’s UK also has a helpline, we distribute a variety of literature including an informative quarterly newsletter and we award an annual research grant. There is currently no cure for Sjögren’s and the cause is still unknown.
AIMS AND OBJECTIVES
Raise awareness of Sjögren’s
Educate people about the condition
Support research into its cause and treatment
Helpline and contact
Even if you are not a member of the Sjögren’s UK, you are welcome to make an initial call to our members’ helpline. If you would like to continue to use it further, we do ask that you become a member, as without this vital financial contribution, this helpline would not be able to operate.
If you need to chat to a friendly, listening ear about Sjögren’s affecting your life, please call our members’ helpline. Remember, if your call is not answered immediately, please be patient as a voicemail facility is available. Please leave your name and telephone number and your call will be returned.
Office: 0121 478 0222
Monday to Thursday: 9am – 4pm
(answer phone facility out of hours)
Helpline: 0121 478 1133
Monday to Wednesday: 9:30am – 4pm
Thursday to Friday: 9:30am – 8pm
REGIONAL GROUPS
Benefits for joining the Sjögren’s UK:
- Providing information and support to those affected by the condition
- Distribute a variety of literature including an informative quarterly magazine
- Operating a national members' helpline facility
- Hosting regular regional meetings throughout the UK
- Link members through our ‘make a friend’ scheme
- Annual medical meeting with talks from consultants and experts in Sjögren's
- Online members forum
- Full access to our informative website
UK membership
£30.00
Overseas membership
£35.00
The Wren Project – our official partner
The Wren Project provides free, ongoing, 1-1 listening support for people diagnosed with autoimmune disease, and in a period of distress living with their condition. The Wren Project looks beyond the medical label of diagnosis to focus on the emotional, social, and mental impact caused by that diagnosis.
