PLEASE READ THESE TERMS AND CONDITIONS CAREFULLY BEFORE USING THIS SITE

These terms of use (together with the documents referred to in it) tells you the terms of use on which you may make use of our website sjogrensuk.org (“our site”), whether as a guest or a registered member. Use of our site includes accessing, browsing, or registering to use any part of our site (including the Online Members’ Portal).

Please read these terms of use carefully before you start to use our site or our Helpline, as these will apply to your use of our site and our Helpline. We recommend that you print a copy for your records.

By using our site or our Helpline, you confirm that you accept these terms of use and that you agree to comply with them.

If you do not agree to these terms of use, you must not use our site, register to become a member of the Online Members’ Portal or call the Helpline.

Other applicable terms

These terms of use refer to the following additional terms, which also apply to your use of our site:

• Our Privacy Policy, which sets out the terms on which we process any personal data we collect from you, or that you provide to us. By using our site, you consent to such processing.
• Our Acceptable Use Policy, which sets out the permitted uses and prohibited uses of our site. When using our site, you must comply with this Acceptable Use Policy.
• Our Cookie Policy, which sets out information about the cookies on our site.
• If you purchase goods from our site, our Terms and conditions of supply will apply to the sales.

Information about us

sjogrensuk.org is a site operated by British Sjögren’s Syndrome Association (“We”). We are charitable company limited by guarantee registered in England and Wales under company number 04771837 and charity number 1101571 and have our registered office at PO Box 15040, Birmingham, West Midlands B31 9DP.

Changes to these terms

We may revise these terms (or any of the additional terms referred to) of use at any time by amending this page (or the relevant page on which the terms are contained).

Please check this page and any other applicable terms from time to time to take notice of any changes we made, as they are binding on you.

Changes to our site

We may update our site from time to time, and may change the content at any time. However, please note that any of the content on our site may be out of date at any given time, and we are under no obligation to update it.

We do not guarantee that our site, or any content on it, will be free from errors or omissions.

Accessing our site

Our site is made available free of charge (save in respect of the Online Members’ Portal).

We do not guarantee that our site, or any content on it, will always be available or be uninterrupted. Access to our site is permitted on a temporary basis. We may suspend, withdraw, discontinue or change all or any part of our site without notice. We will not be liable to you if for any reason our site is unavailable at any time or for any period.

You are responsible for making all arrangements necessary for you to have access to our site.

You are also responsible for ensuring that all persons who access our site through your internet connection are aware of these terms of use and other applicable terms and conditions, and that they comply with them.

Online Member’s Portal

This section applies to users of the Online Members’ Portal, which can only be accessed by users who register for the Online Members’ Portal and pay the registration charge.

Registration Charge

The registration charge is £30 per annum for members in the United Kingdom and £35 per annum for users outside of the United Kingdom.

We may review and increase the registration charge at any time, any change in the registration charge will not take effect until your membership is up for renewal.

You may cancel your membership at any time by emailing office@sjogrensuk.org or calling us on 0121 478 0222. If you cancel within the first 14 days of registration you will be entitled to a full refund of the registration charge. You can use our template model cancellation form. If you cancel after the first 14 days of registration, you will not be entitled to a refund of the registration charge.

Services

Registration as a member of the Online Members’ Portal will entitle you to the following (during the period that you are registered as a member):

• copies of any newsletters that we send (we currently send 4 per year); and
• access to all of the Online Member’ Portal content (including the member’s forum and literature that we publish).

Your account and password

If you choose, or you are provided with, a user identification code, password or any other piece of information as part of our security procedures, you must treat such information as confidential. You must not disclose it to any third party.

If you know or suspect that anyone other than you knows your user identification code or password, you must promptly notify us at office@sjogrensuk.org or telephone 0121 478 0222.

Withdrawal of use of the site by us

We reserve the right to withdraw or suspend your use of the site (including access to and use of all of the services provided to registered members of the Online Members’ Portal) and cancel your registration as a member with immediate effect (without refund), if you commit a material breach any of these terms of use. A breach of our Acceptable Use Policy or of any of the provisions contained in the Intellectual Property Rights section below shall be a material breach (but these are not the only types of breach that may be material).

Intellectual property rights

The material published on our site, including any content available through the Online Members’ Portal is protected by copyright laws. All such rights are reserved.

You may print off one copy, and may download extracts of any page(s) from our site, or documents we publish for download, for your personal use only. You must not use any part of the content on our site for commercial purposes.

You must not modify the paper or digital copies of any materials you have printed off or downloaded in any way, and you must not use any illustrations, photographs, video or audio sequences or any graphics separately from any accompanying text.

If you print off, copy or download any part of our site in breach of these terms of use, your right to use our site will cease immediately and you must, at our option, return or destroy any copies of the materials you have made.

No reliance on information

The content on our site is provided for general information only. It is not intended to amount to advice on which you should rely. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of the content on our site.

Although we make reasonable efforts to update the information on our site, we make no representations, warranties or guarantees, whether express or implied, that the content on our site is accurate, complete or up-to-date.

Limitation of our liability

Nothing in these terms of use excludes or limits our liability for death or personal injury arising from our negligence, or our fraud or fraudulent misrepresentation, or any other liability that cannot be excluded or limited by English law.

We will not be liable to any user for any loss or damage, whether in contract, tort (including negligence), breach of statutory duty, or otherwise, even if foreseeable, arising under or in connection with:

• use of, or inability to use, our site; or
• use of or reliance on any content displayed on our site.

Please note that we only provide our site for domestic and private use. You agree not to use our site for any commercial or business purposes, and we have no liability to you for any loss of profit, loss of business, business interruption, or loss of business opportunity.

We will not be liable for any loss or damage caused by a virus, distributed denial-of-service attack, or other technologically harmful material that may infect your computer equipment, computer programs, data or other proprietary material due to your use of our site or to your downloading of any content on it, or on any website linked to it.

Different limitations and exclusions of liability will apply to liability arising as a result of the supply of any goods by use to you, which will be set out in our Terms and conditions of supply.

Uploading content to our site

Whenever you make use of a feature that allows you to upload content to our site, or to make contact with other users of our site, you must comply with the content standards set out in our Acceptable Use Policy.

You warrant that any such contribution does comply with those standards, and you will be responsible for any loss or damage we suffer as a result of your breach of warranty.

Any content you upload to our site will be considered non-confidential and non-proprietary. You retain all of your ownership rights in your content, but in uploading any content, you to grant us and other users of our site a limited licence to use, store and copy that content and to distribute and make it available to third parties.

We also have the right to disclose your identity to any third party who is claiming that any content posted or uploaded by you to our site constitutes a violation of their intellectual property rights, or of their right to privacy.

We will not be responsible, or liable to any third party, for the content or accuracy of any content posted by you or any other user of our site.

We have the right to remove any posting you make on our site if, in our opinion, your post does not comply with the content standards set out in our Acceptable Use Policy.

Viruses

We do not guarantee that our site will be secure or free from bugs or viruses. You are responsible for configuring your information technology, computer programmes and platform in order to access our site. You should use your own virus protection software.

You must not misuse our site by knowingly introducing viruses, trojans, worms, logic bombs or other material which is malicious or technologically harmful. You must not attempt to gain unauthorised access to our site, the server on which our site is stored or any server, computer or database connected to our site. You must not attack our site via a denial-of-service attack or a distributed denial-of service attack. By breaching this provision, you would commit a criminal offence under the Computer Misuse Act 1990. We will report any such breach to the relevant law enforcement authorities and we will co-operate with those authorities by disclosing your identity to them. In the event of such a breach, your right to use our site will cease immediately.

Linking to our site

You may link to our home page, provided you do so in a way that is fair and legal and does not damage our reputation or take advantage of it.

You must not establish a link in such a way as to suggest any form of association, approval or endorsement on our part where none exists.

You must not establish a link to our site in any website that is not owned by you.

Our site must not be framed on any other site, nor may you create a link to any part of our site other than the home page. We reserve the right to withdraw linking permission without notice.

Third party links and resources in our site

Where our site contains links to other sites and resources provided by third parties, these links are provided for your information only. We have no control over the contents of those sites or resources. We will not be liable for any loss or damage that may arise from your use of them.

Telephone Helpline

We offer a telephone help and support line (referred to as the “Helpline”). The Helpline is provided for general information and support only. The people who operate the Helpline are not medically qualified and the Helpline is not intended to provide advice on which you should rely. You agree that you shall not ask for advice nor rely on any information provided or discussions held over the Helpline You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of any discussions that you may have or information that you may receive on the Helpline.

Whilst we shall use reasonable efforts to provide the Helpline during the days and times stated on our site, we do not guarantee that the Helpline will be available during these periods. We may withdraw the Helpline at any time.

We will not be liable to any user for any loss or damage, whether in contract, tort (including negligence), breach of statutory duty, or otherwise, even if foreseeable, arising under or in connection with:

• use of, or inability to use, the Helpline; or
• use of or reliance on any information or support provided on the Helpline.

Nothing in this section excludes or limits our liability for death or personal injury arising from our negligence, or our fraud or fraudulent misrepresentation, or any other liability that cannot be excluded or limited by English law.

Applicable law

Please note that these terms of use, its subject matter and its formation, are governed by English law. You and we both agree to that the courts of England and Wales will have non-exclusive jurisdiction. However, if you are a resident of Northern Ireland you may also bring proceedings in Northern Ireland, and if you are resident of Scotland, you may also bring proceedings in Scotland.

Contact us

To contact us, please email office@sjogrensuk.org.