This survey asks about your medical relationships, disease symptoms, and health. It should take around 30 minutes to complete (you can pause or stop at any time). We are supporting this study as it will raise awareness about important issues and where more support may be needed, but it is entirely up to you whether […]
The School of Medicine are looking for volunteers for their Long-term health conditions project, which offers students an opportunity to learn by experience about what is like to have, or to care for someone who has, a chronic illness or disability. Each volunteer is paired with three 1st year medical students who will meet with
Volunteer with University of Leeds Read More »
This Winter season Scleroderma & Raynaud’s UK (SRUK) is calling on you to spare just one minute of your time to help unlock potential breakthroughs in diagnosis and treatment for Raynaud’s and other debilitating autoimmune conditions like scleroderma, lupus and vasculitis. The ask is simple, take SRUK’s online symptom test to find out if you
SCLERODERMA & RAYNAUD’S UK NEEDS YOU TO #BEPARTOFTHEANSWER Read More »
What does good care and treatment for rare disease mean to you? The rare disease quality statement project is asking the rare disease community to complete our survey, to develop a set of statements which clearly set out what high-quality, sustainable care, treatment and management look like for rare diseases. We need your support to
2024 RARE DISEASE QUALITY STATMENET SURVEY Read More »
Join our 2024 Annual Conference, Saturday 19th October 2024. Buy tickets now!
2024 ANNUAL CONFERENCE Read More »
Bex Rimmington successfully completed the Great North Run with an impressive time of 1 hour, 42 minutes, and 15 seconds.
