‘My dry eyes and mouth were signs of a devastating disease that mainly strikes women. I’m urging others to seek help as …
Have Your Say: Help Shape Quality Standards for Rare Disease Care RAIRDA’s Rare Disease Quality Statement Project is inviting patients, carers, healthcare …
The 5th Annual Science in Medicine School Teams Prize is now open, a national competition designed to inspire sixth form students to …
As Lupus UK celebrates its 35th anniversary, they are reaching out to the lupus community to shape their priorities for the future. …
Please see links to a publication on the long-term impact of misdiagnoses from Dr Mel Sloan and Prof David D’Cruz’s research team …
We’re pleased to share an opportunity from NHSWE Musculoskeletal Strategic Network. They are launching an MSK Lived-Experience Group and are looking for …
This survey asks about your medical relationships, disease symptoms, and health. It should take around 30 minutes to complete (you can pause …
The School of Medicine are looking for volunteers for their Long-term health conditions project, which offers students an opportunity to learn by …
This Winter season Scleroderma & Raynaud’s UK (SRUK) is calling on you to spare just one minute of your time to help …
What does good care and treatment for rare disease mean to you? The rare disease quality statement project is asking the rare …
Join our 2024 Annual Conference, Saturday 19th October 2024. Buy tickets now!
Bex Rimmington successfully completed the Great North Run with an impressive time of 1 hour, 42 minutes, and 15 seconds.